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Huntington’s Disease is a degenerative neurological disease that some say is worse than ALS, MS, and Alzheimers combined. It destroys the afflicted in ways you can’t possibly fathom. There is no cure and each child of an HD positive parent has a 50 / 50 chance of having it. As I develop this blog I intend to add resources, information, and my thoughts and feelings on the disease in this section. Please check back frequently to learn more and if you can help in any way HD groups around the world are always in need of funds and volunteers. If you cannot support in those manners then your prayers will be much appreciated.
Huntington’s Disease Society of America is a great non-profit organization that assists in many ways those afflicted with Huntington’s disease, their families, and loved ones. They have personally supported me and my family for more than 30 years in one …Read more →
Day 1: The Diagnoses I remember many days like they were yesterday, but today 2 particular days come to mind. We had suspected for so long, but she had been tested negative in the past … heartbreaking … it didn’t …Read more →
Stopped by my brother’s the other day to pick up that water thingy that increases the pressure of your water so you can clean off your house, windows, porches/decks, etc. This was just after a stressful day the day before …Read more →
Today I was challenged by @HDAwareness via twitter to take the #HDPieInTheFaceChallenge. Go to HD Pie in the Face Challenge page on Facebook to see other great videos. You can start your own challenge and do your own video to …Read more →
If you are seeking volunteer opportunities and love Twitter please contact me at firstname.lastname@example.org and mention Interested in HDSA Twitter Volunteer in the subject line. I need some help monitoring the account, seeking relevant content to post, etc. Thanks in …Read more →
There is this monster called Huntington’s disease (HD). HD lives in a very dark place and is a very scary beast that changes the afflicted to someone not recognized by loved ones. This monster is very debilitating to both the …Read more →