There is this monster called Huntington’s disease (HD). HD lives in a very dark place and is a very scary beast that changes the afflicted to someone not recognized by loved ones. This monster is very debilitating to both the mind and body. It invades every aspect of ones life. There is nothing left unscaved, no part of the body, and the soul is left weary as it fights depression against this beast the body cannot possibly defeat.
A once young, vibrant, and kind woman loved by many was afflicted by this beast. She suffered for what seemed like an eternity with the foothold that depression took on her mind. It grabbed hold of her far before it was even recognized the monster had moved in. Leaving her loved ones bewildered and confused not knowing what to do, what to say, or how to help.
The devastation, the destruction … were so profound on this family it nearly destroyed them. Her loving husband of many years finally succumbed to a massive heart attack after years of trying to cope and the stress was just too much. The daughter’s husband couldn’t cope and so he left. Left her with a preemie, a young son, and both her parent’s to care for after going through a c-section and a complete hysterectomy waiting just around the corner. Her daughter who cared for her suffered a deep depression in the wake of it’s destruction, and her grandson even became suicidal with his depression from the destruction this beastly monster wrought.
This monster lead this once beautiful young woman now just in her 50’s to commit suicide in a horrifying manner. Striking yet again another terrifying and devastating blow on this family, but looking back one can plainly see the beast did not truly win … Oh, it may have won it’s fair share of battles, but through the turmoil God brought new life into this family. That beautiful preemie that had to be so strong and now a vibrant, healthy, and beautiful 9 year old. That 9 year old boy who suffered such deep despair that he became suicidal has come through victorious, and is now a young and intelligent young man getting ready to embark on a new chapter of his life as he prepares for college, and the daughter …
… well, that’s me. I’m sitting here writing this so proud of my children, and happy to see them thriving. I’m still single as I have chosen to focus on making a better life for my children and myself. I needed to heal. I am at peace that my mom and dad are no longer in pain, and now have a new home in heaven.
I started a business, started working with different coaches, mentors, counselors, etc. along the way. Whatever was needed at the time it was needed, and allowed myself to go through the process of healing. Oh, I won’t say that I don’t still miss them. I won’t say that sometimes I don’t get sad or flustered over the past, but when I do I am now able to put things into perspective and allow myself to move forward.
Huntington’s disease is a neurological brain disorder with no cure, that is completely physically and mentally debilitating and devastating, eventually leading to death usually brought on by an infection such as pneumonia and often leading to early death due to suicide. It takes both the young and old alike, but it is more common for age of onset to be between the ages of 30 and 50. Huntington’s disease is hereditary and each child of an affected parent has a 50% risk of being afflicted with this devastating disease. To learn more about HD please visit www.hdsa.org / www.hdsa.org/about/our-mission/what-is-hd.html
Obviously, the afflicted in this story was my mother. I love and miss her dearly! I wanted to share a brief sound bite of our story because more awareness needs to be made known. Please share this story or the links in it and make others aware of this horrific disease. I have not known a life that was not affected by HD in someway. My grandfather had it and was always sick, his sister had it, half my mother’s siblings had it and all but one are now dead, and there are so many more that are at risk in my family. So many that I love have had to live with this disease in one way or another and I long to see a cure.
Do you love Twitter? Would you like to help support this cause by helping me with Twitter? Click here to learn more.